Rheumatic Heart Disease

Acute rheumatic fever (ARF) and rheumatic heart disease (RHD) remain major causes of heart failure, stroke and death among African women and children, despite being preventable and imminently treatable. From 21 to 22 February 2015, the Social Cluster of the Africa Union Commission (AUC) hosted a consultation with RHD experts convened by the Pan-African Society of Cardiology (PASCAR) in Addis Ababa, Ethiopia, to develop a ‘roadmap’ of key actions that need to be taken by governments to eliminate ARF and eradicate RHD in Africa. Seven priority areas for action were adopted: (1) create prospective disease registers at sentinel sites in affected countries to measure disease burden and track progress towards the reduction of mortality by 25% by the year 2025, (2) ensure an adequate supply of high-quality benzathine penicillin for the primary and secondary prevention of ARF/ RHD, (3) improve access to reproductive health services for women with RHD and other non-communicable diseases (NCD), (4) decentralise technical expertise and technology for diagnosing and managing ARF and RHD (including ultrasound of the heart), (5) establish national and regional centres of excellence for essential cardiac surgery for the treatment of affected patients and training of cardiovascular practitioners of the future, (6) initiate national multi-sectoral RHD programmes within NCD control programmes of affected countries, and (7) foster international partnerships with multinational organsations for resource mobilisation, monitoring and evaluation of the programme to end RHD in Africa. This Addis Ababa communiqué has since been endorsed by African Union heads of state, and plans are underway to implement the roadmap in order to end ARF and RHD in Africa in our lifetime. (click here to download pdf)

David Watkins, Liesl Zühlke, Mark Engel, et al. Seven key actions to eradicate rheumatic heart disease in Africa: the Addis Ababa Communiqué. CVJAfrica Cardiovascular Topics 2016 January (click here to download pdf)

Mark E Engel, Abraham Haileamlak, Liesl Zühlke. Prevalence of rheumatic heart disease in 4720 asymptomatic scholars from South Africa and Ethiopia. Valvular Heart Disease BMJ. Heart 2015 August (click here to download pdf)

Bongani Mayosi. 2016 National Rheumatic Fever week: Status of Rheumatic Heart Disease in South Africa. SAMJ 2016 August. (click here to download pdf)

M Shung-King, L Zühlke, M E Engel, et al. Asymptomatic rheumatic heart disease in South African schoolchildren: Implications for addressing chronic health conditions through a school health service. SAMJ August 2016. (click here to download pdf)

A Cost-Effectiveness Tool to Guide the Prioritization of Interventions for Rheumatic Fever and Rheumatic Heart Disease Control in African Nations (click here to download pdf)

Article on RHD in Life Healthcare magazine's Jun 2016 issue (click here to download pdf)

Zühlke L, Karthikeyan G, Engel ME, et al. Clinical Outcomes in 3343 Children and Adults with Rheumatic Heart Disease from 14 Low and Middle Income Countries: 2-Year Follow-up of the Global Rheumatic Heart Disease Registry (the REMEDY study) (click here to download pdf)

Shanti Nulu, Robert C. Neely, Zeina Tawakol, et al. Global Cardiology Science & Practice - RHD African Leaders take Action Addis Ababa - Conference Report .GCSP 2016 (click here to download pdf)

Ashley K. Keates, Ana O. Mocumbi, Mpiko Ntsekhe, et al. Cardiovascular disease in Africa: Epidemiological profile and challenges. Nature Reviews Cardiology. May 2017 (click here to download pdf)

Belete Habte, Fessahaye Alemseged, et al. The pattern of cardiac diseases at the cardiac clinic of jimma university specialised hospital, South west Ethiopia. Journal List, Ethiop J Health Sci, July 2010 (click here to download pdf)

Sirageldin M Kheir, Sulafa Khalid M Ali. The control of rheumatic fever and rheumatic heart disease: a call to raise the awareness. Sudanese Journal of Pediatrics, 2014 (click here to download pdf)

Georges Antoine Bazolo Ba Ngouala, Désiré Alain Affangla, et al. The prevalence of symptomatic infantile heart disease at Louga Regional Hospital, Senegal. CVJAfrica. Aug 2015 (click here to download pfd)

Gleason B, Mirembe G, et al. Brief Report: Prevalence of Latent Rheumatic Heart Disease Among HIV-Infected Children in Kampala, Uganda. J Acquir Immune Defic Syndr. February 2016. (click here to download pdf)

A Balbaa1, A ElGuindy, et al. An evaluation of secondary prophylaxis for rheumatic heart disease in rural Egypt. Global Cardiology Science and Practice 2015 (click here to download pfd)

WanZhu Zhang, Emmy Okello, et al. Proportion of patients in the Uganda rheumatic heart disease registry with advanced disease requiring urgent surgical interventions. African Health Sciences. December 2015 (click here to download pdf)

Emmy Okello, Chris T. Longenecker. Rheumatic heart disease in Uganda: predictors of morbidity and mortality one year after presentation. BMC Cardiovasc Disord, January 2017 (click here to download pdf)

Mvondo CM, Pugliese M, et al. Surgery for rheumatic mitral valve disease in sub-saharan African countries: why valve repair is still the best surgical option. Pan Afr Med J. August 2016. (click here to download pdf)

Gabriella Watson, Bintou Jallow, et al. Acute rheumatic fever and rheumatic heart disease in resource-limited settings. BMJ April 2017 (click here to download pdf)

Faten Trikia, Jihen Jdidib, et al. Characteristics, aetiological spectrum andmanagement of valvular heart disease in aTunisian cardiovascular centre. Elsevier, Archives of Cardiovascular Disease 2017 (click here to download pdf)

Rebecca H. Lumsden, Constantine Akwanalo, et al. Clinical and geographic patterns of rheumatic heart disease in outpatients attending cardiology clinic in western Kenya. Elsevier, International Journal of Cardiology 2016 (click here to download pdf)

Tadesse Gemechu, Hani Mahmoud, et al. Community-based prevalence study of rheumatic heart disease in rural Ethiopia. European Journal of Preventive
Cardiology 2017 (click here to download pfd)

Mohamed Rezk, Awni Gamal. Maternal and fetal outcome in women with rheumatic heart disease: a 3-year observational study. Arch Gynecol Obstet 2016 (click here to download pdf)

Dejuma Yadeta, Abrha Hailu, et al. Prevalence of rheumatic heart disease among school children in Ethiopia: A multisite echocardiography-based screening. Elsevier, International Journal of Cardiology 2016 (click here to download pdf)

P Gapu, M Bwakura-Dangarembizi,et al. Rheumatic fever and rheumatic heart disease among children presenting to two referral hospitals in Harare, Zimbabwe. SAMJ May 2015 (click here to download pdf)

Amy Sims Sanyahumbi, Craig A. Sable, et al. Task shifting to clinical officer-led echocardiography screening for detecting rheumatic heart disease in Malawi, Africa. Cardiology in the Young 2016 (click here to download pdf)

Sherri Schwaninger, World Heart Day - BeatRHD Zambia, September 2016 (click here to download pdf)

Alastair White (WHF) Rheumatic Heart Disease Congress in Cairo, Egypt, January 2017 (click here to download pdf)

 

Joris van Dam, John Musuku, Liesl J Zühlke, et al. An open-access, mobile compatible, electronic patient register for rheumatic heart disease (‘eRegister’) based on the World Heart Federation’s framework for patient registers. Cardiovascular Journal of Africa - Advance Online Publication, October 2015 (click here to download)

Action Group 1 - October 2016 Meeting Minutes (click here to download)

Action Group 1 - November 2016 Meeting Minutes (click here to download)

Action Group 1 - December 2016 Meeting Minutes (click here to download)

Action Group 1 - February 2017 Meeting Minutes (click here to download)

Action Group 1 - March 2017 Meeting Minutes (click here to download)

Rosemary Wyber, Timothy Johnson, Jonathan Carapetis, et al. RHD Action Global Status of BPG Report. 2016 (click here to download PDF)

Geoffrey Madeira, Ana Olga Mocumbi, Bongani Mayosi. Advice to Health professionals: Use of lignocaine as a diluent to reduce the pain associated with the administration of BPG. SAMJ 2016 (click here to download PDF). 

Action Group 2 - October 2016 Meeting Minutes (click here to download)

Action Group 2 - November 2016 Meeting Minutes (click here to download)

Action Group 2 - January 2017 Meeting Minnutes (click here to download)

Action Group 2 - February 2017 Meeting Minutes (click here to download)

Jolien W. Roos-Hesselink, Jerome Cornette, Karen Sliwa, et al. Prevention: Contraception and Cardiovascular Disease, European Heart Journal, 2015 (click here to download pdf)

Action Group 3 - August 2016 Meeting Minutes (click here to download)

Action Group 3 - September 2016Meeting Minutes (click here to download)

Action Group 3 - October 2016 Meeting Minutes (click here to download)

Action Group 3 - February 2017 Meeting Minutes (click here to download)

Alice Kidder, Gene Kwan, Corrado Cancedda, et al. The PIH Guide to Chronic Care Integration for Endemic Non-Communicable Diseases, Rwanda Edition, 2011 (click here to download pdf)

Gene F. Kwan, Alice K. Bukhman, Ann C. Miller, et al. A Simplified Echocardiographic Strategy for Heart Failure Diagnosis and Management Within an Integrated Noncommunicable Disease Clinic at District Hospital Level for Sub-Saharan Africa, (Kwan-A Simplified Echocardiographic Strategy), JACC: Heart Failure, 2013 (click here to download pdf)

Action Group 4 - August 2016 Meeting Minutes (click here to download)

Action Group 4 - September 2016 Meeting Minutes (click here to download)

Action Group 4 - November 2016 Meeting Minutes (click here to download)

Action Group 5 - August 2016 Meeting Minutes (click here to download)

Action Group 5 - September 2016 Meeting Minutes (click here to download)

Christopher Hugo-Hamman, Norbert Forster. National Advisory Committee for the Prevention and Control of Rheumatic Fever and Rheumatic Heart Disease in Namibia, CVJAfrica December 2015 (click here to download pdf)

Action Group 6 - September 2016 Meeting Minutes (click here to download)

Action Group 6 - November 2016 Meeting Minutes (click here to download)

Action Group 6 - December 2016 Meeting Minutes (click here to download)

Action Group 6 - April 2017 Meeting Minutes (click here to download)

Action Group 7 - Augustus 2016 Meeting Minutes (click here to download)

Action Group 7 - September 2016 Meeting Minutes (click here to download)

Action Group 7 - November 2016 Meeting Minutes (click here to download)

Action Group 7 - February 2017 Meeting Minutes (click here to download)

WHF Tips Handbook (RhEACH) - Tools for implementing rheumatic heart disease control programmes

Video - (Take Heart – road to Addis) - A short film with Prof Bongani Mayosi that contains the Road to Addis: The political mandate from the heads of state of African Countries to stop RHD

Video - Interview with Namibian MoH - Namibian Broadcasting Corporate Interview with DR Chris Hugo-Hamman and Minister of Health on RHD (19 March 2016) 

Video - RHD Conference Gala video (Egypt) - Prof Magdi Yacoub from Chain of Hope presents Haile’s story, a 12 year old orphan with RHD

Sudan RHD Poster: English /  Arabic

Coming soon:

Sudan Training Module

Zambian Training Module

Talking points

Powerpoint presentation on Report of RHD Action Groups